Hemophilia Society Nagpur Chapter

World Hemophilia Day celebrated by LMH

 

• Dr. Shashikant Apte assured all necessary help to hemophilics.
• Good initiative by Dr. Ayushree Deshmukh for hemophilics.

Hemophilia society Nagpur chapter under the aegis of Lata Mangeshkar Hospital, Nagpur organized an event to commemorate World Hemophilia day 2023 at Chitnavis Centre, Civil Lines, Nagpur on 30th April. The theme for this year is "Access for All: Prevention of bleeds as the global standard of care".

The programme was inaugurated by Chief Guest Dr. Shashikant Apte who is a well known Hematologist from Sayadhari Hospital, Pune & President Medical Hemophilia federation India. He focused on Diagnosis, Treatment and Awareness on Hemophilia. He said, "It is necessary to prevent internal bleeding. Parents can take better care of hemophilics. A normal life can be lived with good care. Factors should be available at reasonable rates. New medicines will soon be available in the market. Suggestions of patients are very important for continuous improvement in treatment. Lata Mangeshkar Hospital is doing well for betterment of hemophilics. Awareness about Hemophilia is needed in the society." He promised to help People with Hemophilia in best possible way.

Dr. Kajal Mitra (Dean, NKP Salve Institute of Medical Sciences & RC) was the guest of honour. Other guests were Dr. Atish Bakane, Dr. Shivani Sule, Dr. Sanjay Pakhmode, Dr. Meena Deshmukh (Medical superintendent, ESIC), Dr. Amit Nemade, Dr. Pankaj Agrawal, Dr. Mrs. Shrikhande, Dr. Rajkumar Rathi.

Dr. Kajal Mitra said, "Public awareness about hemophilia is essential. This intemal bleeding disorder in the joints is beyond the understanding of the common man. Blood does not clot in this disorder. To prevent this, it is necessary to diagnose it first. Then continue the treatment. Since the treatment is expensive, there is a need for safe and advance treatment from the government. This is when the health industry and society need to come forward and lend a helping hand. Lata Mangeshkar Hospital is doing a good job in treating hemophilia related factors and treatment."

The other guests expressed their valuable thoughts on this disorder.

Dr. Ayushree Deshmukh, President, Hemophilia Society Nagpur Chapter said in her address, "After Covid19, some things are going smoothly. So it is possible to do something through the Hemophilia Society Nagpur Chapter. General diagnostic tests are being done at the hemophilia centre in Lata Mangeshkar Hospital, Sitabuldi, Nagpur. If public awareness is raised, this disorder can be controlled. Corporate social responsibility and community support through various channels will be of great help to hemophilics. I sincerely appeal to healthcare industry to emphasize the prevention, protection and availability of effective treatment care to all the persons affected with hemophilia. The government should make the provision of better treatment and control of bleeds in persons suffering from this bleeding disorder."

The highlight of the program was the launch of website of Hemophilia Society Nagpur Chapter by the hands of the chief guest.

Dr. Anju Mehrotra Kadu, Secretary explained about the website and presented the secretary report.

Then it was followed by informative sessions for patients By Dr. Shashikant Apte Sir and Dr. Atish Bakane.

Commonly asked questions were moderated by Dr. Anju Mehrotra Kadu.

Dr. Soumya Prakash and Dr. Nikhil Selukar were master of ceremony.

The 14 nursing student of the Madhuribai Deshmukh College of Nursing and VSPM College of Nursing presented a skit on the Hemophilia to create awareness.

Programmme concluded with the magic show for the people with Hemophilia and their family. Around 120 people were present for the event which was supported by office bearers of hemophilia society Nagpur chapter.

( Hemophilia is a rare disorder in which the blood of the patient does not clot properly due to lack of blood-clotting proteins. When a person with Hemophilia suffers an injury, the lack of clotting factors can cause him/her to have excessive bleeding. They do not bleed faster than others; they just bleed for a longer time.)